When I was born I was blue.  My par­ents did not expect me to live.  I was rushed by ambu­lance to a major hos­pi­tal, hop­ing to do some­thing to save my life.  I sur­prised them and lived.  I had a con­gen­i­tal heart defect that made it dif­fi­cult for blood to pass through my lungs.  I was oper­at­ed on and a shunt was put in and I went from blue to pink.  My par­ents watched me like a hawk, mak­ing sure I didn’t get sick.

I had sev­er­al more oper­a­tions through­out my child­hood and when I was 17 had a major surgery that changed my life.  It left me with an ugly scar but my angio­plas­ty was a big suc­cess.
Today I still am cau­tious.  I know I may need more surgery and I deal with it.  Wouldn’t it be great if I didn’t have to wor­ry?

IN 2016, THE U.S. EXPERIENCED

60
Of the deaths of men in the US are due to heart dis­ease
630,000
Amer­i­cans die from heart dis­ease each year.
200
Bil­lion dol­lars each year is the cost for heart dis­ease in the Unit­ed States
366,000
Peo­ple die from coro­nary heart dis­ease (the most com­mon type) each year

Heart Disease Deaths Vary by Race and Ethnicity

Native Amer­i­cans

18.4%

Asians or Pacif­ic Islanders

22%

Non-His­pan­ic Blacks

24%

Non-His­pan­ic Whites

24%
Peggy – Age 40 – Minneapolis, Minnesota

Peggy – Age 40 – Minneapolis, Minnesota

Heart Dis­ease

Burgesse – Age 39 – Portland, Oregon

Burgesse – Age 39 – Portland, Oregon

Heart Dis­ease

Olivia – Age 76 – Charleston, South Carolina

Olivia – Age 76 – Charleston, South Carolina

Heart Dis­ease

Emma – Age 30 – Aberdeen, Washington

Emma – Age 30 – Aberdeen, Washington

Heart Dis­ease

Organizations

The Cleve­land Clin­ic Heart & Vas­cu­lar Insti­tute 
9500 Euclid Avenue
Cleve­land, Ohio 44195
Phone: (216) 444‑2200 or (800) 659‑7822
my.clevelandclinic.org/departments/heart

The Amer­i­can Asso­ci­a­tion for Tho­racic Surgery 
800 Cum­mings Cen­ter
Suite 350-V
Bev­er­ly, MA 01915
Phone: (978) 252‑2200
Fax: (978) 524‑8890
Email: aats@prri.com
www.aats.org

Amer­i­can Col­lege of Car­di­ol­o­gy 
Heart House
2400 N Street NW
Wash­ing­ton DC, 20037
(800) 253‑4636, ext. 5603 or (202) 375‑6000
Fax: (202) 375‑7000

Email: resource@acc.org
www.acc.org

Amer­i­can Heart Asso­ci­a­tion 
Amer­i­can Heart Asso­ci­a­tion Nation­al Cen­ter
7272 Greenville Avenue
Dal­las, Texas 75231
1–800-AHA-USA-1 or 1–800-242‑8721
www.heart.org

Hyper­trophic Car­diomy­opa­thy Asso­ci­a­tion 
18 East Main Street, Ste. 202
Denville, NJ 07834
Phone: (973) 983‑7429
Email: support@4hcm.org
www.4hcm.org

U.S. Food and Drug Admin­is­tra­tion: Eat for a Healthy Heart 
Depart­ment of Health and Human Ser­vices
10903 New Hamp­shire Avenue
Sil­ver Spring, MD 20993
Phone: 1–888-INFO-FDA (1–888-463‑6332)
www.fda.gov/ForConsumers/ConsumerUpdates/ucm199058.htm

4527 South 2300, Ste. 104
Salt Lake City, UT 84117
1–800-272‑3023
www.sads.org

The Mend­ed Hearts, Inc. (for heart surgery patients)
Mer­ry Acres Exec­u­tive Build­ing

1500 Daw­son Road
Albany, GA 31707
Phone: 1–888-432‑7899
Email: info@mendedhearts.org
www.mendedhearts.org

Nation­al Heart, Lung and Blood Insti­tute 
Build­ing 31
31 Cen­ter Dri­ve
Bethes­da, MD 20892
Phone: (301) 592‑8573
Email: NHLBIinfo@nhlbi.nih.gov
www.nhlbi.nih.gov

Heart Rhythm Soci­ety 
1325 G Street, NW
Ste 400
Wash­ing­ton, D.C. 20005
Phone: (202) 464‑3400
Fax: (202) 464‑3401
www.hrsonline.org

The Soci­ety of Tho­racic Sur­geons 
633 N. Saint Clair Street, Floor 23
Chica­go, IL 60611
Phone: (312) 202‑5800
Fax: (312) 202‑5801
www.sts.org

TRIO — Trans­plant Recip­i­ents Inter­na­tion­al Orga­ni­za­tion, Inc. 
7055 Her­itage Hunt DR, #307
Gainesville, VA 20155–3031
Phone: 1–800-TRIO-386 or (202) 293‑0980
Email: info@trioweb.org
www.trioweb.org

U.S. Depart­ment of Health and Human Ser­vices, Office on Women’s Health 
200 Inde­pen­dence Ave, SW Room 712E
Wash­ing­ton, DC 20201
Phone: (800) 994‑9662
www.womenshealth.gov

Web Sites

Adult Con­gen­i­tal Heart Asso­ci­a­tion 
www.achaheart.org 

The Cana­di­an Adult Con­gen­i­tal Net­work 
www.cachnet.org

The Car­dio­tho­racic Surgery Net­work 
www.ctsnet.org

Con­gen­i­tal Heart Cen­ter Ency­clo­pe­dia 
A ser­vice of Children’s Hos­pi­tal Med­ical Cen­ter of Cincin­nati
www.cincinnatichildrens.org/patients/child/encyclopedia

Cut to the Heart 
www.pbs.org/wgbh/nova/heart

The Nation­al Coali­tion for Women with Heart Dis­ease 
www.womenheart.org

Go Red for Women 
www.Goredforwomen.org